Rare Patient Voice rewards patients & caregivers for sharing insights
Rare Patient Voice has more than 200,000 registered patients and family caregivers spanning rare, chronic and complex conditions.
Rare Patient Voice has more than 200,000 registered patients and family caregivers spanning rare, chronic and complex conditions.
Advancements in research and ongoing clinical trials related to HDFN prevention and treatment can change HDFN care for the better.
A J&J presentation at ISUOG highlighted what patients go through after an HDFN diagnosis.
HDFN has affected 2 of Andrea Renzi’s 5 children and turned her into an activist on behalf of other mothers and families touched by the disease.
Erin Collins was 37 weeks and four days pregnant in 2019 when—after an agonizing 32 hours in labor—she gave birth to B.B., her stillborn son. It took her years to overcome the trauma of that day and come face-to-face with the illness that caused it: hemolytic disease of the fetus and newborn (HDFN). The charity […]
There is an urgent need for a registry of patients with hemolytic disease of the fetus and newborn (HDFN), says Derek de Winter, M.D.