Advocacy

After I found out my baby was at risk, I wanted to make sure I had all the information available to me to make the best choices us both.

Every week during my HDFN-affected pregnancy was an emotional rollercoaster, and I constantly cycled between fear and relief.

After I learned that my infant was at risk of anemia and alloimmunization, I underwent regular MCA Doppler ultrasounds until my delivery.

HDFN Companion ambassador Taylor Jeans discusses what it was like to advocate for her daughter’s invisible illness.

HDFN has caused many delays in my child’s physical and cognitive development, and she has hit some milestones later than other kids.

When I learned I had tested positive for anti-Kell antibodies, I was terrified, but I wanted to learn everything I could about my condition.

After coming home from the NICU, I quickly realized caring for a baby with HDFN was very different from caring for a completely healthy baby.

Hospital trauma is a real and often overlooked experience that affects parents long after the birth of their child.

It can be difficult to explain to family and friends the medical terms and potential complications that may arise with alloimmunization.

I had no idea what to expect from my c-section or what would happen to my daughter who had HDFN after delivery.