Features

In honor of Rare Disease Day, here are 10 new treatments approved by the FDA to treat rare diseases over the past year.

Rare Disease Day 2025 aims to uplift the rare disease community and promote greater awareness.

Though jaundice is very common, if left untreated, it can become life-threatening for an infant.

HDFN has affected 2 of Andrea Renzi’s 5 children and turned her into an activist on behalf of other mothers and families touched by the disease.

Learn more about ‘glass child’ syndrome and how it can affect the sibling of a child who has higher medical needs.

Learn more about the potential long-term consequences and challenges a child may face if they have HDFN as an infant.

Learn more about the potential benefits of delayed umbilical cord clamping, including increased blood flow and improved iron status.

In pregnancies at risk of hemolytic disease of the fetus and newborn (HDFN), amniocentesis is used to identify the fetus’s genotype.

Learn about why delayed hemolysis occurs, how it can affect newborns diagnosed with HDFN and how it can be treated.

Erin Collins was 37 weeks and four days pregnant in 2019 when—after an agonizing 32 hours in labor—she gave birth to B.B., her stillborn son. It took her years to overcome the trauma of that day and come face-to-face with the illness that caused it: hemolytic disease of the fetus and newborn (HDFN). The charity […]